The DVD from the Chasing Competent Care conference at the Stormont Hotel, Belfast, 6th June 2016.
“The Problem with Pain”
Dr Pamela Bell MB BCh FFARCSI FRCA FFPMCAI FFPMRCA trained in anaesthesia and held Consultant Posts in the Ulster, North Down and Ards Hospitals. In 1995 she was appointed to Musgrave Park Hospital where she established a Pain Clinic and developed a specialist interest in the management of children and adolescents with long term pain, the first in Northern Ireland. Since retirement she has been actively involved in raising awareness of the burden of long term pain through the work of the Pain Alliance of Northern Ireland of which she is the Chair.
“The Exercise Dilemma with Fibromyalgia”
Dr Joseph McVeigh PhD is a lecturer in physiotherapy and a member of the Centre for Health and Rehabilitation Technologies (CHaRT). He was awarded his PhD in 2007 and became a Fellow of the Higher Education Academy and a Fellow of the Centre for Higher Education and Practice in 2013. Dr McVeigh regularly presents his research at national and international conferences and has research collaborations with colleagues in The Mayo Clinic, USA, Otago University, New Zealand, University College Dublin, Keele University, UK. His present work in the School of Health Sciences, University of Ulster, is in collaboration with colleagues in the University of Seville, Spain.
“A Review of the PACE Trial”
Professor Malcolm Hooper PhD B.Pharm C.Chem MRIC Emeritus Professor of Medicinal Chemistry, University of Sunderland. Professor Hooper is an internationally-renowned expert on ME/CFS and a tireless campaigner for patients’ rights. Professor Hooper has previously chaired Invest in ME conferences and participates in The Hooper Interviews.
“The search for biomarkers in ME/CFS: accelerating diagnosis, predicting treatment response”
Professor Mady Hornig MD, MA, is Associate Professor of Epidemiology and Director of Translational Research in the Jerome L. and Dawn Greene Infectious Disease Laboratory at the Mailman School of Public Health, Columbia University. Researchers at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as myalgic encephalomyelitis (ME/CFS) or systemic exertion intolerance disease. The findings could help improve diagnosis and identify treatment options for the disabling disorder, in which symptoms range from extreme fatigue and difficulty concentrating to headaches and muscle pain.
“A Parent’s Perspective: ‘Lost Voices’ as the years pass.”
Natalie Boulton Director and producer of educational documentary, “Voices from the Shadows”. The film was made between 2009 – 2011 by Natalie Boulton and Josh Biggs – the mother and brother of a chronic ME sufferer. Josh is a young professional freelance editor and cameraman. Natalie was an artist/teacher and is a full time career for her daughter who has been ill since 1990.
“Amplifying the Voice of the Patient”
Louise Skelly BA MBA is Head of Operations for the Patient & Client Council. Prior to joining the organisation Louise worked for the Belfast Health & Social Care Trust, Department of Health and Social Services and Public Safety, and the Southern Heath and Social Services Board Area. She has over thirty years’ experience in both acute hospital and community services. Louise has also held position of Lay Magistrate for NI Courts and Tribunal service for over 10 years.