Chasing Competent Care DVD Cover 2

Chasing Competent Care Conference DVD

£10.00

This is the DVD that I filmed of the latest Hope 4 ME & Fibro Northern Ireland conference “Chasing Competent Care” at the Stormont Hotel, Belfast, 6th June 2016.

I am selling it here on behalf of the charity to help them raise much needed funds. After printing and production costs any profit goes to the charity.

IMPORTANT NOTE ABOUT DELIVERY:

Currently I can only ship this to the UK, Northern Ireland and the Republic of Ireland, and limited to 1 copy only per shipping. If you need more than 1 copy, please email me first before placing your order so that I can calculate delivery costs.

 

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Product Description

The DVD from the Chasing Competent Care conference at the Stormont Hotel, Belfast, 6th June 2016.

Speakers:
Dr Pamela Bell“The Problem with Pain”
Dr Pamela Bell
MB BCh FFARCSI FRCA FFPMCAI FFPMRCA trained in anaesthesia and held Consultant Posts in the Ulster, North Down and Ards Hospitals. In 1995 she was appointed to Musgrave Park Hospital where she established a Pain Clinic and developed a specialist interest in the management of children and adolescents with long term pain, the first in Northern Ireland. Since retirement she has been actively involved in raising awareness of the burden of long term pain through the work of the Pain Alliance of Northern Ireland of which she is the Chair.

 

Dr Jospeh McVeigh“The Exercise Dilemma with Fibromyalgia”
Dr Joseph McVeigh  PhD is a lecturer in physiotherapy and a member of the Centre for Health and Rehabilitation Technologies (CHaRT).  He was awarded his PhD in 2007 and became a Fellow of the Higher Education Academy and a Fellow of the Centre for Higher Education and Practice in 2013. Dr McVeigh regularly presents his research at national and international conferences and has research collaborations with colleagues in The Mayo Clinic, USA, Otago University, New Zealand, University College Dublin, Keele University, UK. His present work in the School of Health Sciences, University of Ulster, is in collaboration with colleagues in the University of Seville, Spain.

 

Malcolm Hooper“A Review of the PACE Trial”
Professor Malcolm Hooper PhD B.Pharm C.Chem MRIC Emeritus Professor of Medicinal Chemistry, University of Sunderland. Professor Hooper is an internationally-renowned expert on ME/CFS and a tireless campaigner for patients’ rights. Professor Hooper has previously chaired Invest in ME conferences and participates in The Hooper Interviews.

 

 

Mady Hornig “The search for biomarkers in ME/CFS: accelerating diagnosis, predicting treatment response”
Professor Mady Hornig MD, MA, is Associate Professor of Epidemiology and Director of Translational Research in the Jerome L. and Dawn Greene Infectious Disease Laboratory at the Mailman School of Public Health, Columbia University. Researchers at the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health identified distinct immune changes in patients diagnosed with chronic fatigue syndrome, known medically as myalgic encephalomyelitis (ME/CFS) or systemic exertion intolerance disease. The findings could help improve diagnosis and identify treatment options for the disabling disorder, in which symptoms range from extreme fatigue and difficulty concentrating to headaches and muscle pain.

 

Natalie Boulton “A Parent’s Perspective: ‘Lost Voices’ as the years pass.”
Natalie Boulton Director and producer of educational documentary, “Voices from the Shadows”. The film was made between 2009 – 2011 by Natalie Boulton and Josh Biggs – the mother and brother of a chronic ME sufferer. Josh is a young professional freelance editor and cameraman. Natalie was an artist/teacher and is a full time career for her daughter who has been ill since 1990.

 

Louise Skelly“Amplifying the Voice of the Patient”
Louise Skelly BA MBA is Head of Operations for the Patient & Client Council. Prior to joining the organisation Louise worked for the Belfast Health & Social Care Trust, Department of Health and Social Services and Public Safety, and the Southern Heath and Social Services Board Area. She has over thirty years’ experience in both acute hospital and community services. Louise has also held position of Lay Magistrate for NI Courts and Tribunal service for over 10 years.

About Hope 4 ME & Fibro Northern Ireland

Hope 4 ME & Fibro NI is a registered charity run entirely by patient volunteers.

Activities:

  • Monthly support meetings on the first Tuesday of each month in the Mourne Country Hotel, Newry, at 7pm with regular guest speakers.
  • Annual Conferences featuring international researchers and leading experts. These events help medical professionals and healthcare decision makers to access the best current knowledge and understanding.
  • Lobbying for Specialist Biomedical Care. At present there is no consultant led clinic for ME in Northern Ireland, and provision for fibromyalgia is erratic. Hope 4 ME & Fibro NI demand:
    • a proper consultant physician led clinic that offers both expert diagnosis and best clinical care.
    • that any therapy-based provision led by non-clinical staff can only be used in support of the above consultant led clinic. It cannot be a replacement.
  • Fundraising. Funds raised are used to support the above activities and are also donated to selected biomedical research projects as finances allow.

Further Information:

Phone: 07712 892834

Twitter: @hope4mefibro

Website: www.hope4mefibroni.btck.co.uk/

Facebook Group: Hope 4 ME & Fibro

Northern Ireland Registered charity no. NIC100184

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