“First Do No Harm” Conference September 2018 USB Version

£14.00

This is the USB flash drive version that I filmed of the latest Hope 4 ME & Fibro Northern Ireland conference Management of ME/CFS: “First Do No Harm” conference at the Parliament Buildings, Stormont, Belfast, 17th September 2018.

I am selling it here on behalf of the charity to help them raise much needed funds. After production costs any profit goes to the charity.

IMPORTANT NOTE ABOUT DELIVERY:

Currently online orders through this website can only be shipped to the UK, Northern Ireland and the Republic of Ireland, and limited to 1 copy only per shipping. If you need more than 1 copy, or are from outside the UK, Northern Ireland and the Republic of Ireland, please email me first before placing your order so that I can calculate delivery costs.

 

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Description

The recording of the Management of ME/CFS: “First Do No Harm” conference at the Parliament Buildings, Stormont, Belfast, 17th September 2018. Available on USB flash drive

Speakers:
Dr Pamela Bell“The Importance of The Patient Voice”
Dr Pamela Bell
MB BCh FFARCSI FRCA FFPMCAI FFPMRCA trained in anaesthesia and held Consultant Posts in the Ulster, North Down and Ards Hospitals. In 1995 she was appointed to Musgrave Park Hospital where she established a Pain Clinic and developed a specialist interest in the management of children and adolescents with long term pain, the first in Northern Ireland. Since retirement she has been actively involved in raising awareness of the burden of long term pain through the work of the Pain Alliance of Northern Ireland of which she is the Chair.

“The Importance of The Patient Voice” 
Louise Skelly
, BA MBA, Head of Operations Patient & Client Council for Northern Ireland. Prior to joining the organisation Louise worked for the Belfast Health & Social Care Trust, Department of Health and Social Services and Public Safety, and the Southern Heath and Social Services Board Area. She has over thirty years’ experience in both acute hospital and community services. Louise has also held position of Lay Magistrate for NI Courts and Tribunal service for over 10 years.

Photo of Natalie Boulton“ME/CFS: Children & Young People – Diagnosis, Symptoms and Controversies & Management”
Natalie Boulton  Producer of the award winning educational documentary “Voices from the Shadows” premier screening.

 

Photo of Dr Jose Montoya“Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: An Unfolding Story of Scientific Discoveries and Future Targeted Treatment”
Dr Jose G. Montoya, MD, is the head of the ME/CFS Initiative at Stanford University, has treated ME/CFS patients and conducted extensive clinical research in an effort to improve diagnosis and treatment of this debilitating illness. Under Dr. Montoya’s leadership. the ME/CFS Initiative has had great success in engaging and collaborating with nearly 50 researchers across Stanford University and beyond. Together. they have discovered various potential biomarkers that have confirmed that ME/CFS is a real, physical disease. These discoveries are dramatically changing public and scientific opinions.

Photo of Dr William Weir“The Diagnostic Dilemma”
Dr. W.R.C. Weir. NHS Infectious Disease Consultant with a special interest in M.E. and fibromyalgia

 

About Hope 4 ME & Fibro Northern Ireland

Hope 4 ME & Fibro NI is a registered charity run entirely by patient volunteers.

Activities:

  • Monthly support meetings on the first Tuesday of each month in the Mourne Country Hotel, Newry, at 7pm with regular guest speakers.
  • Annual Conferences featuring international researchers and leading experts. These events help medical professionals and healthcare decision makers to access the best current knowledge and understanding.
  • Lobbying for Specialist Biomedical Care. At present there is no consultant led clinic for ME in Northern Ireland, and provision for fibromyalgia is erratic. Hope 4 ME & Fibro NI demand:
    • a proper consultant physician led clinic that offers both expert diagnosis and best clinical care.
    • that any therapy-based provision led by non-clinical staff can only be used in support of the above consultant led clinic. It cannot be a replacement.
  • Fundraising. Funds raised are used to support the above activities and are also donated to selected biomedical research projects as finances allow.

Further Information:

Phone: 07712 892834

Twitter: @hope4mefibro

Website: www.hope4mefibroni.btck.co.uk/

Facebook Group: Hope 4 ME & Fibro

Northern Ireland Registered charity no. NIC100184

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