Seeking Solutions for ME & Fibromyalgia Conference DVD

£10.00

This is the DVD that I filmed of the latest Hope 4 ME & Fibro Northern Ireland conference “Seeking Solutions for ME & Fibromyalgia” in the long Gallery, Parliament Buildings, Stormont, Belfast on the 30th May 2017.

I am selling it here on behalf of the charity to help them raise much needed funds. After printing and production costs any profit goes to the charity.

IMPORTANT NOTE ABOUT DELIVERY:

Currently I can only ship this to the UK, Northern Ireland and the Republic of Ireland, and limited to 1 copy only per shipping. If you need more than 1 copy, please email me first before placing your order so that I can calculate delivery costs.

 

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Description

The DVD from the Seeking Solutions for ME & Fibromyalgia conference at the Stormont Hotel, Belfast, 30th May 2017.

Speakers:
Photo of Linda Tannenbaum“Research Hope for Me & Fibromyalgia” – Linda Tannenbaum MB. CEO of Open Medicine Foundation (USA)
With years of executive management experience as a clinical laboratory scientist, Ms. Tannenbaum owned and ran a successful independent clinical laboratory for over 21 years before starting two non-profits to raise funds for ME/CFS research. Fulfilling a promise to their daughter, who came down with sudden onset ME/CFS at the age of 16 in 2006, Ms. Tannenbaum and her husband had started their first non-profit Neuro-Immune Disease Alliance (NIDA) to raise funds from family and friends. Ms. Tannenbaum soon realized that open, global collaborative research was lacking and founded Open Medicine Foundation (OMF) in 2012 to take the efforts to a much larger level to fund and facilitate large research projects to find a cure for ME/CFS and other similar chronic illnesses. Ms. Tannenbaum received her degree in Bacteriology from UCLA in 1978 and her Clinical Laboratory Scientist/Medical Technology license in 1979.

 

Photo of Professor Olav Mella“ME/CFS: Are We Closing in on the Disease Mechanisms and is Better Treatment Soon Available?” Professor Olav Mella Bergen University Hospital (Norway).
Olav Mella, is director of the oncology department at Haukeland University Hospital, Norway, and Øystein Fluge, a researcher and oncologist, from the same hospital.
Along with Øystein Fluge, a researcher and oncologist, from the same hospital, he is conducting a phase III trial of rituximab in chronic fatigue syndrome/myalgic encephalomyelitis patients. Professor Mella and Dr Fluge have published a paper “Benefit from B-Lymphocyte Depletion Using the Anti-CD20 Antibody Rituximab in Chronic Fatigue Syndrome. A double-Blind and Placebo-Controlled Study“.

 

Photo of Dr William Weir“ME: Past, Present & Future”Dr William Weir FRCP, FRCP (Edin). Consultant Physician (UK)
Dr Weir qualified from St Andrews and Dundee University Medical School 1972. He has held Senior House Officer posts in Nephrology, Cardiology, Neurology, and Chest Medicine. During his senior career he worked in The Hospital for Tropical Diseases, London. and later at the Royal Free Hospital where he was appointed a Consultant in Infectious Diseases (+ Trop Medicine) RFH 1987. Dr Weir also spend two years at Ahmadu Bello University Medical School in Nigeria. Although formally retired, he now does freelance consultancy work in hospitals around the UK. He has a longstanding interest in ME and is Medical Advisor to Hope 4 ME & Fibro NI. Dr Weir now regularly sees ME patients privately, and advises on disease management and treatment.

 

Photo of David Tuller “The UK PACE Trial: An exploration of the “evidence” for graded exercise therapy for ME” – David Tuller, DrPH (USA)
David is the academic coordinator of University of California Berkeley’s joint masters program in public health and journalism. He frequently writes for The New York Times; and in 2016, was recipient of both the IACFS/ME Special Service Award – for Outstanding Personal Effort and Contribution and the Tymes Trust Award for Scientific Journalism.

 

Photo of Christine McMaster “ME & Fibromyalgia Care in Northern Ireland – Recent Developments” – Dr Christine McMaster, Consultant in the Public Health Agency
Dr McMaster, is currently supporting efforts to improve health services for ME patients in Northern Ireland. She will offer a progress report since her work on this, and collaboration with the charity trustees, commenced in November 2016.

 

About Hope 4 ME & Fibro Northern Ireland

Hope 4 ME & Fibro NI is a registered charity run entirely by patients and volunteers.

Activities:

  • Monthly support meetings on the first Tuesday of each month in the Mourne Country Hotel, Newry, at 7pm with regular guest speakers.
  • Annual Conferences featuring international researchers and leading experts. These events help medical professionals and healthcare decision makers to access the best current knowledge and understanding.
  • Lobbying for Specialist Biomedical Care. At present there is no consultant led clinic for ME in Northern Ireland, and provision for Fibromyalgia is improving slowly. Hope 4 ME & Fibro NI seek:
    • a proper consultant physician led clinic that offers both expert diagnosis and best clinical care.
    • that any therapy-based provision led by non-clinical staff can only be used in support of the above consultant led clinic. They cannot be a replacement.
  • Fundraising. Funds raised are used to support the above activities and are also donated to selected biomedical research projects as finances allow.

Further Information:

Phone: 07712 892834

Twitter: @hope4mefibro

Website: www.hope4mefibro.org/

Facebook Group: Hope 4 ME & Fibro

Northern Ireland Registered charity no. NIC100184

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